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Public Statements

National Pediatric Research Network Act of 2013

Floor Speech

Location: Washington, DC


Mr. GENE GREEN of Texas. Mr. Speaker, I support the National Pediatric Research Network Act, H.R. 225. Thank you to Representatives CAPPS and MCMORRIS-RODGERS for their continued leadership on this issue.

This important bill will allow the National Institutes of Health to focus funding on researching rare and genetic pediatric diseases such as spinal muscular atrophy, muscular dystrophy, Down syndrome, and Fragile X. Because there are such a small number of incidences of these terrible diseases, they are extremely difficult to study. This bill takes steps toward giving our research community the tools necessary to increase research of an array of diseases that cause so much pain and suffering to children and their families.

Increasing our nation's commitment to researching rare pediatric diseases is an area that enjoys bipartisan support. I look forward to voting for this bill and urge my colleagues to do the same.


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