National Pulmonary Fibrosis Awareness Week

Floor Speech

By:  Erik Paulsen
Date: Sept. 21, 2012
Location: Washington, DC

Mr. PAULSEN. Mr. Speaker, today, nearly 200,000 Americans suffer from Pulmonary Fibrosis, and an estimated 40,000 lose their battle to this disease each year. One death every 13 minutes.

Sadly, more than two-thirds of those living with Pulmonary Fibrosis will die within five years. And to top it all off there is no known cause and no known cure for this debilitating disease.

Next week is ``World Pulmonary Fibrosis Awareness Week'' and an opportunity to raise awareness for H.R. 2505 the ``Pulmonary Fibrosis Research Enhancement Act.'' This legislation which I authored will establish a much needed national patient registry, encourage future research at the National Institute of Health, and create a national action plan to help us better understand this deadly disease.

This is an important first step forward in the fight to find a cure for pulmonary fibrosis and deliver hope to thousands of Americans living with this disease. I urge my colleagues to join me and co-sponsor H.R. 2505.

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