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Senate Passes ALS Registry Act, Cosponsored by Domenici

Press Release

Location: Washington, DC

Senate Passes ALS Registry Act, Cosponsored by Domenici

U.S. Senator Pete Domenici today reported that the Senate has approved legislation he cosponsored to establish a national ALS registry to try to advance the quest for a cure for Lou Gehrig's disease.

The Senate passed the ALS Registry Act (S.1382) by unanimous consent. The measure now requires approval by the House of Representatives in order to become law. The House last year approved a similar bill on a broad bipartisan basis.

Domenici cosponsored the ALS Registry Act in May after meeting with ALS Association advocates, Renie Garcia y Griego and David Meister, both of Albuquerque.

"Now that both houses of Congress have passed similar legislation, I am hopeful we can agree on a final bill and get it to the President," Domenici said. "A registry will help researchers understand Lou Gehrig's disease and other neurological disorders that incapacitate people's lives."

S.1382 would establish a registry for the collection and storage of data on ALS, which is commonly referred to as Lou Gehrig's disease. The registry will collect and make available data and information essential to furthering the study and finding a cure for ALS.

Among other things, the bill directs the Centers for Disease Control and Prevention to develop a system to collect data on amyotrophic lateral sclerosis (ALS) and other motor neuron disorders that can be confused with ALS, misdiagnosed as ALS, or progress to ALS.

ALS is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. ALS afflicts more than 5,600 people per year. The ALS Association is focused on increasing public and private support of research concerning the disease, as well as health care reforms that respond to the demands that are imposed on those who have the disease.

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