Grassley, Bennet Laud CMS for Issuing New Guidance to Improve Care for Children with Complex Medical Needs

Press Release

Date: Aug. 2, 2022
Location: Washington, DC

Today, Sens. Chuck Grassley (R-Iowa) and Michael Bennet (D-Colo.) made the following joint statement after the Centers for Medicare & Medicaid Services (CMS) issued guidance to state Medicaid directors on the implementation of the Advancing Care for Exceptional (ACE) Kids Act.

"We appreciate CMS issuing additional guidance to state Medicaid programs to implement our bipartisan ACE Kids Act. In April, we pressed CMS about the October 1 implementation of the ACE Kids Act. We look forward to reviewing this new guidance to ensure it follows congressional intent and will continue working with stakeholders to ensure CMS is ready on October 1. ACE Kids will help vulnerable kids and their families by improving coordination in the health care system to produce healthier outcomes. On average, these kids see five to six specialists and up to as many as 20 to 30 allied health professionals. Parents are often overwhelmed at the scope of that care. Helping these families navigate the bureaucracy and cut red tape is commonsense policy, and we look forward to its full implementation later this year," Grassley and Bennet said.

The ACE Kids Act, which Grassley and Bennet ushered through Congress in 2019, allows children with medically-complex conditions to choose to enroll in a health home -- if a state Medicaid program permits -- in an effort to improve care coordination and health outcomes. Specifically, this law helps CMS and state Medicaid programs align rules and reimbursements to reduce unnecessary hospitalizations and provide better care coordination for children with complex medical needs. CMS is required to fully implement the law by October 1, 2022.


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