Alopecia Areata Awareness Month

Floor Speech

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Ms. PRESSLEY. Mr. Speaker, I rise today in solidarity with my fellow Americans with alopecia in recognition of September as Alopecia Areata Awareness Month.

Today, like nearly 7 million Americans, I live with alopecia, an autoimmune disease that attacks the hair follicles. This common condition is highly unpredictable and cyclical. Hair can grow back in or fall out again at any time, and the course is different for each person.

Alopecia areata disproportionately affects children and Black Americans, and particularly Black women.

Some people may say that it is just hair, but for me and for many people living with alopecia, hair is intrinsically linked to our identity and our cultural expression.

We all have our own unique stories with our alopecia diagnosis. Mine began nearly a year ago as my braider noticed a small patch of baldness. Very soon after, I was waking up to sinks full of hair. What started as a few small patches quickly spread.

I remember the moment vividly. I was alone in my D.C. apartment, separated from my family, on the same day that would have been my mother's 72nd birthday and on the eve of an impeachment vote. I was standing in the bathroom, staring at my reflection in the mirror, and for the first time I was completely bald.

For months, I had dreaded the moment when it would be all gone; but looking at myself in the mirror that night, I felt relief, peace, and acceptance. It was a moment of grace, and I thank God for that.

In a matter of weeks, I would lose my eyelashes, eyebrows, and the rest of my hair and be diagnosed with alopecia universalis, one of three forms of alopecia.

I am still coming to terms with my new alopecia reality and the impact of my traumatic hair loss. Every day, thanks to the support of my family, my staff, the broader alopecia community, and others who have experienced hair loss, I am making progress.

I am making progress despite the hateful comments, the cruel and constant online harassment about my baldness, the intrusive and ignorant questions on the elevators, the unsolicited advice, and the stares, lots of stares.

No doubt about it, a bald woman entering a room or entering the floor of the U.S. House of Representatives makes people uncomfortable. Visually, it challenges every antiquated cultural norm about what is professional, what is pretty, what is feminine.

But in the loss, the hurt, and the ache of it all, I have never lost sight of the following: I am Sandy and Martin's daughter; I am Conan's wife; I am Cora's stepmom; and I am the Congresswoman for the Massachusetts Seventh Congressional District.

Mr. Speaker, I am now bald, but I am in good health and in incredible company. I have received an outpouring of love from people across the globe who are living with alopecia.

Early on, I received a note from an elementary school-aged girl with alopecia. She wanted to give me some tips in navigating this new normal. She told me about the first time she walked into school after her diagnosis, ``Just walk right up to your friends and tell them, `I'm still me,' '' she wrote.

Who couldn't use a reminder like that as they navigate the world? Those little acts of kindness and solidarity have defined this experience, too.

I am proud to be in the good company of those fighting for people living with alopecia. There is an entire community that has been working tirelessly to share their stories and to educate the public on the impact of alopecia areata.

For three decades, the National Alopecia Areata Foundation has been working to garner congressional support for research and treatment development. My longtime friend and partner in good, Congressman McGovern, introduced legislation to allow medical wigs to be covered under the Medicare program so that every senior living with alopecia can afford wigs and other head coverings.

This year, the House passed my amendment to provide an additional $5 million in next year's funding for the National Institutes of Health, which will fund research to increase our understanding of the causes, impacts, and possible treatments of alopecia areata.

I know that our work is far from over, and I will continue to fight. I will take my seat at the table. I will take up space, and I will create it, too; and with this space, we will make change.

Every single person deserves to show up in the world exactly as they are without fear or discrimination. To my fellow alopecians wherever you may be, today I bring our story to the floor of the people's House to say that we belong, our stories deserve to be heard, and we are absolutely beautiful and worthy.

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