Rep. Slaughter and Biggert Announce Bi-Partisan Genetic Non-Discrimination Legislation
Rep. Slaughter and Biggert Announce Bi-Partisan Genetic Non-Discrimination Legislation
Rep. Louise M. Slaughter (D-NY-28), Chairwoman of the House Rules Committee, was today joined by Rep. Judy Biggert (R-IL-13) and Sharon F. Terry, Chair of the Coalition for Genetic Fairness, in announcing the reintroduction in the House of the Genetic Information Nondiscrimination Act (GINA).
"This bill is the culmination of a bipartisan effort to prohibit the improper use of genetic information in workforce and insurance decisions," Rep. Slaughter said. "In the 12 years since I first introduced genetic nondiscrimination legislation, the need for it has grown exponentially. Scientific research has advanced so quickly that we cannot afford to wait any longer. This bill will allow us to preserve America's health and protect our scientific edge, all while defending the privacy of our citizens."
"We will never unlock the great promise of the Human Genome Project if Americans are too paranoid to get genetic testing," said Rep. Biggert, a chief sponsor of the legislation in the 109th Congress. "Without the protections offered by H.R. 493, these fears will persist, research at NIH will slow, and Americans will never realize the benefits of gene-based medicines."
"This bill is about our children, our future, and ensuring that Americans cannot be discriminated against in health insurance and employment decisions," said Sharon Terry. "As an advocate and as the Chair of the Coalition for Genetic Fairness, I understand the promise of genetic medicine and am appalled by the experiences of the many individuals and families who have experienced genetic discrimination."
"Congresswoman Slaughter, Congresswoman Biggert, Congresswoman Eshoo, and Congressman Walden demonstrate robust vision and courage to introduce legislation that will make it possible for people to benefit from new genetic tests and technologies," she added.
http://www.louise.house.gov/index.php?option=com_content&task=view&id=751&Itemid=1